Wednesday, May 11, 2016

CF Clinic

Well, it’s that time again.  A's CF clinic appointment was yesterday.

The Good:
A’s lung function remained steady and was unchanged from last time.  Always good to hear.  He saw his favorite doctor and we always enjoy catching up with the CF clinic staff.  I was able to attend!!  Always a relief when I get to be by his side. :)

The Bad:
A was coming down with his second cold in a couple weeks so he wasn’t feeling great.  It was just frustrating that he had felt well a few days ago, but was now feeling the effects of another virus – I know he always likes to be in good shape and as healthy as can be for clinic appointments.  He has been exercising more and doing extra vests on weekends so I think we were both hoping his numbers might be up slightly.  A’s weight was down a couple pounds, his heart rate was slightly elevated, and he had a mild fever.  All of that makes me a bit worried, but the doctor wasn’t too concerned.  He prescribed an oral antibiotic and we’ll continue to monitor.  If A isn’t feeling better after the antibiotics, then the doctor recommended IV antibiotics.

The Ugly:
Our weather.  Yup, I’m complaining about it again.  It rained nearly all day yesterday and as a result of that and traffic accidents, it took us 2 hours to get to the hospital.  2 hours.  Uggh.  A was supposed to start with an audiology appointment because apparently one of the medications he takes (I’m not sure which one, sorry) can potentially cause hearing loss.  We left our house an hour and a half before the appointment, but still missed it.  It also took a long time to get home and we were both worn out by afternoon.

So all in all, not a bad appointment, but not great either.

No comments:

Post a Comment